We certainly love our Dr. Osborne and today was more confirmation. And especially thankful for access to Houston’s Dr. Osborne (tried to explain this before and may be hard to track but he is huge player in breast cancer – my doctor and doctors from everywhere including the breast cancer docs at MDA go to his breast cancer conference in San Antonio every year). He knows not only the latest and greatest but his responsible for much of that research. He’s also a great teacher! So, though Scott and I looked at each other with ‘over my head’ eyes while the Osbornes talked to each other (she asked to join via conference call), we are confident that they are smart, they are on our team, and they are creatively trying to solve this dilemma. After a quick conversation and exam he asked to leave and review some more of my file. He came back in probably :20-:30 later and his first words were ‘well, you’re a challenge…’ (He has no idea how true that statement is!) and confirmed that the fact that the trial was effective on the metastatic disease while my boob turns into a water balloon is very confusing! He also explained that the nature of inflammatory (in skin and blood vessels) makes it appear more aggressive than the pathology states (10-15% which is lower than liver and previous breast biopsies).
I requested prayers for clarity. He answered! Both of the Osbornes agree, unfortunately, that I have to quit the trial despite the positive result in metastic disease. They also both agree on a chemo regimen as the next steps. If I understood correctly, the 2 chemo drugs are generally well tolerated and I know that at least one of them doesn’t cause hair loss. So maybe I won’t be wearing the flashing neon sign (as in a bald head) that I am a cancer patient?!
Not sure when chemo will start but since I already have a port and my Dr. Osborne is rating to go, I won’t be surprised if it is next week. I’ll keep you posted. In meantime, check out this cuteness…
I am not even sure Lincoln knows we are in Houston. What’s not to love about an slumber party, Easter party, and play date while we are gone? He got the better end of this deal than Scott. But I am quite thankful for my roadtrip-loving sidekick who makes me laugh. During the appt, when we connected with Dr. Osborne via phone he called her ‘Barbara’ (it’s Cindy/Cynthia) and Scott and I were dying (well, really, it’s just me that’s dying but Scott was laughing pretty hard!😉 It’s ok to laugh. At least I think so!). Houston Osborne is very kind but kind of serious so he didn’t even flinch when I worked in ‘Cindy’ (hint hint!) and he couldn’t get out the door before we were laughing so hard at our own awkwardness and inability to recover. Scott said it was ‘emergency brake moment’ (Ticket reference?) and that’s a perfect description of what happened in my brain because as he continues on some deep thoughts wondering if this was a new cancer or the same, all Scott and I could hear was ‘Barbara Barbara Barbara Barbara…’ And Scott said all he could see was my eyes get huge and he was trying not to visualize Dr. Osborne being really ticked on the other line (which she wasn’t but made for better visual in our re enactment for ourselves). Gotta love a little cancer comedic relief. And that 3 year old. And sweet family and friends who pray and text and check on us! Big pink love to all.