Well, today is a fun change of schedule for me. Instead of headed to Baylor I am headed to the gym with my little man. The protocol for the trial is set up such that for the first cycle of the drugs (four weeks), they need blood draws and EKGs every week. But, for the next six months, the schedule changes to every other week. What shall I do with all my free time?! 🙂 I feel really normal today getting to be with Lincoln by myself without the doctor in without school (for him) or a tight schedule. Fun for me!
I continue to fight fatigue, especially in the late afternoon, but other than that feel pretty normal and myself. I am definitely at the stage where every stomach pain or cough KEYN make me wonder if something is happening on the inside. But another benefit of the trial is additional scans. We have our first scan, since the trial started, on February 18. I am glad for that information.
And, lastly, we continue to marvel at God’s people and God’s provision. We came home from a weekend away at a friends farm, and found a hand-delivered envelope stamp “confidential.” Inside was a precious letter of encouragement and desire to bless our family with fun and a check for, as they said, date nights or Disney. The check and the letter were unsigned. They were marked all over with love and encouragement – but not a name.
The Lord continues to remind us that he will meet all of our needs. Not only funds for medical expenses and help with care for Linc but He is kind enough to even provide the funds for fun 🙂
Thanks to all of you for the many ways you bless our family. Not everybody writes anonymous checks but whether it’s text or meals or surprise flowers or hugs… All of it is part of Gods plan to sustain us. And we thank you.