Thought I would share with all the text I shared with family and few others last night as a quick mini update regarding results from Monday:
I talked to Dr. Osborne. The pet scan confirmed what she called “a bunch of mess” in the right breast – inflammatory breast cancer which is super aggressive (but that’s not new news) and it presents in the skin so distorts the breast considerably. She wasn’t able to compare it to the CT scan to know how recent this growth is. And she didn’t have the MRI results yet. She was also super frustrated with pathology folks at Baylor because the tissue did not get mailed as expected to the research company – who is also motivated to understand what’s going on so I feel like Novartis is also on ‘the team.’ Anyways, tissue just arrived where it needs to be. Hopefully we will have some information at least before we see Dr. Osborne in Houston next Wednesday (25th). She is willing to wait for a week or so to see what the research/pathologies says but it sounds like she is most likely gonna “cut her losses” and consider another course of action. Based on biological markers in my cancer, and there are many (she called it ‘a dirty tumor’ with all kinds of mutations) she thinks there are some viable options. She is leaning towards the chemotherapy she mentioned. I don’t know if the MRI will provide any more information or not – or what different information it provides. She also hopes to go back down to radiology and be able to compare the pet scan to the CT scan side-by-side. in short, it’s definitely not good news. Also, because she can’t do a side to side comparison she isn’t able yet to see if there are significant changes in other areas. Based on the write up from the radiologist, the lesions elsewhere sound similar. But she wants to compare them herself.
She left me a message and then I called her back with Scott on the line so he was able to hear it all too. Definitely very heavy for him. I see more and more of the burden he is caring for me and especially for Lincoln. His prayer, once again, was super sweet and just begging for grace for all of us.
Thanks for joining Scott in praying for grace for us and all the family and friends grieving with us.