I think that is the best and only way to summarize everyone’s medical reaction to what’s going on with me. I know, it’s not a very technical term, but it fits. It’s weird. Both my nurse from the clinical trial and my doctor just marvel at the scenario – and say ‘that’s weird.’ It raises so many questions about why the medicines seem to work for my lymph nodes and in my liver (at least stable in liver and regression in lymph nodes) and yet it is growing aggressively in my breast and skin. So, in the stage 4 language of “metastasis”, it is now metastasized to my bones, liver, around my lungs, lymph nodes in my chest, and now my skin. As always, today, Dr. Osborne was so thorough and patient and I feel like she sits in the quandary with us. She is humble enough to acknowledge she needs additional input from the other Dr. Osborne and yet confident enough to present a lot of options. The challenge is that all of these options are wildcards. We are in an unusual situation so there isn’t a standard protocol for these variables. We are all looking forward to getting more information from Dr. Osborne in Houston. And my sweet Dr. Osborne (Dallas) offered and suggested that she join us via conference call and wants me to call her at the end of her clinic day to debrief her. I feel so loved by that.
I haven’t been officially kicked off of the trial yet but it’s looking that way. Dr. Osborne feel strongly that she needs to pursue another strategy to stop the spread in my breast. And it’s crazy – it is visibly changing week by week. Some of my friends and those of who are in Bible study with me can attest to that 🙂 Viewings available to any females that are interested. I’m quite obsessed with the weirdness and happy to show any interested parties. Even maybe there was an older man I don’t know in the waiting room that got a sneak peek when I attempted to show Jamie and Amy today? Their heads went down in embarrassment and I think his perked up! I have no shame. But I do have one huge boob! Amy and Jamie don’t have the same obsession of seeing my boob as I do of showing it!
And then there was this lovable Therapet beast, Quinn, hanging out with us too.
We will keep you updated on Dr. Osbornes input in Houston and our next course of action.
We would love prayers for the following:
– safe and fun trip to Houston (we love the shoulder to shoulder road trip and talk time!)
– Scott to be able to stay connected and caught up with family and work (not easy to spend half day today at doctor and all day Wednesday and switch gears from heavy head and heart stuff back to work which piles up)
– wisdom and clear direction from Dr. Osborne in Houston. Dr O (Dallas) is sending me with 4-5 ideas but, as in ‘word of the day: weird!’ none of them are considered standard protocol or have research data to support specific plans in this context (the uni-big boob!).
Thanks for everything. And we do mean ‘everything’. The Lord has taken care of everything we have needed. And we have confidence in His continued provision.